The Promoting Excellence Huntington's Disease Peer Workgroup recommends
that hospice programs:
- Develop assessment criteria for determining the end
stage of HD to guide
hospice referral and admission until CMS changes the six-month life expectancy
of the Medicare Hospice Benefit.
- Promote the full use of current eligibility
guidelines to extend hospice services to patients with late stage HD and
- Expand their capacity to care for HD patients and families
and coordinate the health care and social support services they need.
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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.