The Promoting Excellence Huntington's Disease Peer Workgroup calls
upon national patient advocate organizations to:
- Develop and disseminate information
that stresses the efficacy of individualized treatment techniques designed
to improve quality of life, while recognizing
the affected people's right to decline medical intervention.
- Inform caregivers
about the need for medical alert bracelets or similar devices.
- Encourage caregivers
to enroll their family member in programs such as the Safe Return Program
of the Alzheimer's Association (www.alz.org/Services/SafeReturn.asp).
articles, Web sites and mailings about palliative care that enhance education
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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.