Palliative Care (General)

NOTE: Some listings include a link to a related Promoting Excellence demonstration project.

Articles
Bakitas M, Hopkins S, Thomas IV C, Varma S, Fanciullo G. “Development of a Clinical Care Screening Tool to Assess Patient-Defined, Nonphysiological Palliative Care Needs.” Journal of Terminal Oncology, 2(2): 75-85. 2003.

Codden P, Toce S. “Applying Palliative Care Principles to Children at the End of Life.” Care of the Dying: Supportive Voice, Fall 2000.
(SMM Cardinal Glennon Children’s Hospital)

Cohen LM. ”Pulling the Plug.” Palliative and Supportive Care, 1(3): 2003. http://journals.cambridge.org
(Baystate Medical Center)

Cohen LM, Germain M, Poppel DM, Woods A, Kjellstrand CM. “Dialysis Discontinuation and Palliative Care.” American Journal of Kidney Disease, 36(1): 140-144, 2000.
(Baystate Medical Center)

Crawley L, Payne R, Bolden J, Payne T, Washington P, Williams S. “Palliative and End-of-Life Care in the African American Community.” Journal of the American Medical Association, 284(19): 2518-2521, 2000.
(Cooper Green Hospital)

Foti ME. “Do It Your Way: End of Life Care for Persons with Serious Mental Illness – A Massachusetts Demonstration Project”. The Journal of Palliative Medicine, 6: 661-669, 2003.
(Massachusetts Department of Mental Health)

Holman GH and Forman WB. “On the 10th Anniversary of the American Academy of Hospice and Palliative Medicine (AAHPM): The First 10 Years.” American Journal of Hospice and Palliative Medicine, 18: 275-278, 2001.
(University of New Mexico)

Kitzes J. “Palliative Medicine: Facing Challenges Beyond a Cure.” Indian Health Services Provider, 24(2): 23-25, 1999.
(University of New Mexico)

Lee MY, and Forman WB. “Palliative Care of the Geriatric Patient.” Internal Medicine World Reports, May 15, 2001.
(University of New Mexico)

McSkimming S, Carney B and Lieberman C. “A Call to Care – Living and Dying in Community.” Bioethics Forum.
(Supportive Care of the Dying)

McSkimming S, London M, Lieberman C, Geerling E. “Improving Response to Life-Threatening Illness.” Health Progress, 85(1): 26-33, 2004.
(Supportive Care of the Dying)

Norman M and Rabow MW. “Primary Care Clinician Challenges with End-of-Life Care.” Journal of Palliative Medicine (Abstract),15(S1): 138, 2000.
(University of California – San Francisco)

Ogle KS, Bricker LJ, Lambing AY, Green DD, Winn B, Mishkin D. “Completing a Life: An Interactive Multimedia Resource for Educating and Empowering Patients and Family Education in End-of-Life Care.” Journal of Palliative Medicine, 6(5): 841-850, 2003.
(Henry Ford Health Systems)

“Promoting Excellence in Caregiving.” Last Acts Newsletter, Spring 2001.
(Children’s Hospital and Regional Medical Center)

Rabow MW, Schanche K, Petersen JJ, Dibble SL, McPhee SJ. “Patient Perceptions of An Outpatient Palliative Care Intervention: ‘It had been on my mind before, but I did not know how to start talking about death’.” Journal of Pain Symptom Management, 26:1010-1015, 2003.
(University of California – San Francisco)

Tuch H. “A Good Death.” The Journal of Palliative Medicine, 4; 509-510, 2001.
(University of Pennsylvania)

Winn B. “Completing a Life – A Resource for Taking Charge, Finding Comfort & Reaching Closure.” Professional Interaction Design Portfolios, April 2002.

Books
A Guide to Building a Hospital-Based Palliative Care Program. The Center to Advance Palliative Care (CAPC).

Byock I. Dying Well: The Prospect of Growth at the End-of-Life. Putnam/Riverhead 1997.

Byock I. The Four Things That Matter Most: A Book About Living. Free Press, 2004.

Heffner JE and Byock I (eds.). Palliative and End-of-Life Pearls. Philadelphia:Hanley and Belfus, Inc. 2002.

Staton J, Shuy R and Byock I. A Few Months to Live: Different Paths to Life’s End. Georgetown University Press, 2001.

Chapters
Bakitas MA and Dahlin C. “Palliative Care” In Primary Care: A Collaborative Approach, 2nd ed., St. Louis: Mosby, 2003
(Dartmouth-Hitchcock Medical Center)

Bakitas MA, Whedon MB and Stephany T. “Section Eight: End-of-Life Care.” In Manual of Medical-Surgical Nursing Care: Nursing Interventions and Collaborative Management, St. Louis: Mosby, 2002.
(Dartmouth-Hitchcock Medical Center)

Cohen LM. “Planning of a Renal Palliative Care Program and Its Components.”
In Supportive and Palliative Care for Renal Patients, London :Oxford University Press.
(Baystate Medical Center)

Cohen LM, Germain MJ.“Palliative and Supportive Care.” In Therapy of Nephrology and
Hypertension: A Companion to Brenner’s The Kidney, 2nd ed., Philadelphia, PA: Elsevier Science, 2003.
(Baystate Medical Center)

Cohen LM, Reiter G, Poppel D, Germain M. “Renal Palliative Care.” In Palliative Care
for Non-Cancer Patients, London: Oxford University Press, 2001.
(Baystate Medical Center)

Poppel D and Cohen LM. “Renal.” In A Clinician’s Guide to Palliative Care, Malden, MA: Blackwell Publishing, Inc., 2003.
(Baystate Medical Center)

Whedon MB. “Improving End-of-Life Care: Hospitals.” In Oxford Textbook of Palliative Nursing, Oxford: Oxford University Press, 2001.

Reports

The Core Principles for End-of-Life Care: Position Statement:2001. American Psychiatric Association.
(Massachusetts Department of Mental Health)

Living and Healing During Life-Threatening Illness. McSkimming SA, Super A, Driever MJ, Schoessler M, Franey S.
(Supportive Care of the Dying)

Press Coverage

"Bringing Palliative Care Home to Patients Engaged in Clinical Trials: An Interview with Joan Blais.” Innovations in End-of-Life Care, 5(4): 2003.
www.edc.org/lastacts
(University of California – Davis School of Medicine)

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families.