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PediatricsNOTE: Some listings include a link to a related Promoting Excellence demonstration project.
Andresen EM, Seecharan GA, Toce SS. “Provider Perceptions of Child Deaths.” Archives
of Pediatrics & Adolescent Medicine, 158 (5):430-5, May 2004. Children’s Hospital & Regional Medical Center. “Pediatric
Palliative Care Project: Educational Seminar.” Linkages, December 1999/January
2000. Children’s Hospital & Regional Medical Center “Pediatric Palliative
Care Project,” Linkages, March/April 2000. Children’s Hospital & Regional Medical Center “Pediatric Palliative
Care Project,” Linkages, June/July 2000. Children’s Hospital & Regional Medical Center “Pediatric Palliative
Care Project,” Linkages, September/October 2000. Children’s Hospital & Regional Medical Center. “Pediatric
Palliative Care Project: Enrollments Will End, Consultations Continue.” Linkages,
March/April 2001, www.cshcn.org/news/Linkages.cfm Codden P, Toce S. “Applying Palliative Care Principles to Children at
the End of Life,” Care of the Dying: Supportive Voice, Fall 2000. Cohen LM. “Assisting Parental Affirmation,” American Journal
of Orthopsychiatry, Cohen LM. “Perinatal and Sudden Infant Deaths: Foci of Mourning.” Text
of Human Development, Special Learning Center, NY, 1980. Collins MA and Carron Sr J. “Letting Go, Saying Good-Bye: Grieving the
Death of a Child,” Care of the Dying: Supportive Voice, Spring 2001. “Creating a New Policy Framework for Pediatric Palliative Care”.
State Initiatives in End-of-Life Care 16, September, 2002. “Enhancing the Quality of Life for Dying Children,” Children’s
Hospitals Today, Fall, 2001. Niermeyer S, Kattwinkel J, Van Reempts P, et.al. “International Guidelines
for Neonatal Resuscitation: An Excerpt from the Guidelines 2000 for Cardiopulmonary
Resuscitation and Emergency Cardiovascular Care: International Consensus on
Science.” Pediatrics 106(3), September 2000, e29. http://pediatrics.aappublications.org/cgi/content/full/106/3/e29 Niermeyer S, Kattwinkel J, Van Reempts P, et.al. “Neonatal Resuscitation.” Pediatrics 102(suppl l): 1343-57, September 2000, e29. “Paying for Care Needed by Children with Life-Limiting Conditions.” State Initiatives in End-of-Life Care 15 (2): 2002. “Pediatric Palliative Care Project.” Children’s In House October 25, 1999. Seecharan G, Andresen EM, Norris K, Toce SS. “Parents’ Assessment of Quality of Care and Grief Following a Child’s Death.” Archives of Pediatrics & Adolescent Medicine, 2004; 158:515-520.
Toce S. “Ethical Decision Making in the Delivery Room,” Focus
on Pediatrics, Spring 2001 Toce SS. “Ethical Decision Making at End of Life,” Focus on
Pediatrics,
Fall, 1998. Toce SS. “Perinatal Loss: Gone but Not Forgotten,” The Perinatal
Times, 14:3-4, 1999. Toce SS. “Ethical Decision Making for the Child with a Life-Limiting
Condition,” Care of the Dying: Supportive Voice, 7(4): 6-8, 2001. Toce SS. “The Roles of Data Collection, Evaluation, and Research in
Pediatric Palliative Care.” Care of the Dying: Supportive Voice, Winter/Spring
2002. Toce SS. “NRP 2000: The Millennium Edition.” The Perinatal Times,
Spring 2001. Toce SS and Collins MA. “The FOOTPRINTS SSM Model of Pediatric Palliative
Care.” Journal of Palliative Medicine 6(6):989-1000, 2004.
Books Perloff J. and Rizzo V. Conversations from the Heart: Resources for Talking
with Children about a Parent’s Serious Illness. Life Institute www.thelifeinstitute.org
Book Chapters Toce SS, Leuthner SR, Dokken DL, Carter B, Catlin A. “Perinatal Loss.” In
Palliative Care for Infants, Children and Adolescents: A Practical Handbook,
Carter B and Levetown M (eds). Baltimore: Johns Hopkins University Press, 2004.
News Coverage Smith C. “Here’s Help in Making the Tough Choices,” Seattle
Post-Intelligencer, September 11, 2000. “Study Shows New Approach Helps Children with Life-Threatening Illnesses,” Regence
Online News, October 5, 2001.
Reports Toce SS. “DNR, Futility, and Quality of Life: Decisions Regarding Withholding
and Withdrawing Life-Sustaining Medical Treatment.” Children’s
International Project on Palliative/Hospice Services (CHIPPS), pp 28-30, Compendium
of Pediatric Palliative Care, National Hospice and Palliative Care Organization,
Alexandria, 2000. Toce SS. “Applying Hospice Principles to the Care of the High Risk Newborn” Children’s
International Project on Palliative/Hospice Services (CHIPPS), pp 14-21, Compendium
of Pediatric Palliative Care, National Hospice and Palliative Care Organization,
Alexandria, 2000.
Bibliographies
Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. |
